Rare Disease Week on Capitol Hill – 2/25 – 28 2024

#RareDC2024
Rare Disease Week on Capitol Hill empowers and inspires hundreds of advocates each year. The connections you make during the week will impact rare disease patients for generations to come.
Hosted by the Rare Disease Legislative Advocates (a program of the EveryLife Foundation for Rare Diseases), this multi-day event brings together rare disease advocates from across the country to make their voices heard by their Members of Congress. Participants are educated on policy proposals impacting the rare disease community and provided opportunities to advocate for policy changes directly to their Members of Congress. No matter one’s connection to rare disease or their advocacy experience level, all are welcome.
Click here to learn more about the event on the Every Life Foundation for Rare Diseases website.

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New SCD Resource

Prince George's County

If you have sickle cell disease (SCD) and you live in Prince George's County (PGC), or if you know someone with SCD living in PGC, we have a SCD program specifically for PGC residents!