PATIENT-POWERED REGISTRY

Get Connected

Get Connected is the 1st national patient-powered registry for those with sickle cell disease and sickle cell trait. This registry serves as a resource hub and case management tool, and is solely controlled by you. Get Connected is free and, follows all HIPPA and Confidentiality laws.
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Whether you are looking to learn more about our services, and how we can help, or you’re looking for volunteer opportunities, to make a donation, or have any questions about the Maryland Sickle Cell Disease Association, please reach out!
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Breaking News

FDA Approves First Gene Therapies to Treat Patients with Sickle Cell Disease

On December 8, 2023, “The U.S. Food and Drug Administration approved two milestone treatments, Casgevy and Lyfgenia, representing the first cell-based gene therapies for the treatment of sickle cell disease (SCD) in patients 12 years and older. Additionally, one of these therapies, Casgevy, is the first FDA-approved treatment to utilize a type of novel genome editing technology, signaling an innovative advancement in the field of gene therapy."