With COVID-19 at the forefront of nearly everyone’s minds, the Medical and Research Advisory Committee (MARAC) at SCDAA wants to provide information to our sickle cell community. Educating yourself about the coronavirus reduces anxiety and empowers you to protect yourself – and your family – from getting sick. The potential health risk posed by COVID-19 …
COVID-19 Health Alert for Patients and Caregivers Read More »
The United States and countries around the world face a major public health concern with the current outbreak of the novel (new) coronavirus (COVID-19). This webpage is intended to help healthcare providers stay abreast of the best and latest resources for hematologists affected by COVID-19. Read more about ASH’s COVID-19 resources here. ASH President’s Message: …
Sickle cell disease is the most common inherited red blood cell disorder in the United States, and it affects millions of people worldwide. In people living with SCD, the red blood cells, which are normally round, become crescent or sickle-shaped which contributes to the vaso-occlusive crises these patients experience. People with SCD suffer from an …
“Care Today, Cure Tomorrow,” joined patients, families, and providers to discuss and share information that addressed the critical issues framing the future of Sickle Cell Disease treatment and management. Below you’ll find links to conference presentations. The Cure Sickle Cell Initiative (CureSCi) – Dr. Traci Heath Mondoro Gene Therapy Technologies for SCD: from no treatment …
Care Today, Cure Tomorrow Conference Presentations Read More »
“There’s no time to waste. That’s the mantra of Wilmer donors and researcher Adrienne Scott, who is building on research that revolutionized the field half a century ago to help patients whose condition has gone underfunded for too long.” Click here to view the article.
GROUND BREAKING NEWS!!! The FDA has approved a second drug for patients living with sickle cell disease. With the recent approval of Endari, patients now have an additional option to help reduce the complications associated with the disease. Read more here
