World Sickle Cell Day 2020 – Community Call to Action!

June 19th is officially designated as World Sickle Cell Awareness Day. As a part of the SiNERGe shine the light on sickle cell campaign we are asking the community to “mask up” for sickle cell. Individuals living with sickle cell disease are more susceptible to getting COVID-19, thus we are “masking up” to help protect [...]

2020-06-18T22:28:53+00:00June 18th, 2020|

COVID-19 Health Alert for Patients and Caregivers

With COVID-19 at the forefront of nearly everyone’s minds, the Medical and Research Advisory Committee (MARAC) at SCDAA wants to provide information to our sickle cell community. Educating yourself about the coronavirus reduces anxiety and empowers you to protect yourself – and your family – from getting sick. The potential health risk posed by COVID-19 [...]

2020-03-22T01:01:07+00:00March 22nd, 2020|

ASH COVID-19 Resources for Hematologists

The United States and countries around the world face a major public health concern with the current outbreak of the novel (new) coronavirus (COVID-19). This webpage is intended to help healthcare providers stay abreast of the best and latest resources for hematologists affected by COVID-19. Read more about ASH's COVID-19 resources here. ASH President's Message: [...]

2020-03-22T01:03:58+00:00March 22nd, 2020|

My Life With Sickle Cell DIsease: Patient and Caregiver Survey

Call to Action During the ICER Review Sick Cells, the Sickle Cell Disease Association of America (SCDAA) and a multi-disciplinary task force are working with ICER to inform the evaluation of the clinical and economic impact of new treatments for SCD. We are asking patients and caregivers to complete the “My Life with Sickle Cell [...]

2020-01-27T03:52:54+00:00January 27th, 2020|

ASH and FDA Unveil New Recommendations to Guide Clinical Development of Sickle Cell Disease Therapies

Sickle cell disease is the most common inherited red blood cell disorder in the United States, and it affects millions of people worldwide. In people living with SCD, the red blood cells, which are normally round, become crescent or sickle-shaped which contributes to the vaso-occlusive crises these patients experience. People with SCD suffer from an [...]

2020-01-20T19:08:54+00:00January 20th, 2020|

Care Today, Cure Tomorrow Conference Presentations

"Care Today, Cure Tomorrow,” joined patients, families, and providers to discuss and share information that addressed the critical issues framing the future of Sickle Cell Disease treatment and management. Below you'll find links to conference presentations. The Cure Sickle Cell Initiative (CureSCi) - Dr. Traci Heath Mondoro Gene Therapy Technologies for SCD: from no treatment [...]

2019-05-27T23:48:45+00:00May 27th, 2019|

FDA Approves New Treatment for Sickle Cell Disease

GROUND BREAKING NEWS!!! The FDA has approved a second drug for patients living with sickle cell disease.  With the recent approval of Endari, patients now have an additional option to help reduce the complications associated with the disease.  Read more here    

2017-07-10T16:05:57+00:00July 10th, 2017|