How a Clinical Trial Participant Became an Advocate for the Sickle Cell Community

Shauna Whisenton was once an individual living with sickle cell disease (SCD). Now she’s an advocate for better therapies, a cure, and a better understanding of SCD. Whisenton's journey was tough. She was hospitalized, received anti-rejection medications, and had to undergo chemotherapy. She persevered with support from family and her medical team. For Whisenton, treatment [...]

2020-01-14T03:36:03+00:00January 14th, 2020|

FDA Approves First Targeted Therapy to Treat Patients with Painful Complication of Sickle Cell Disease

On November 15, 2019, the U.S. Food and Drug Administration approved Adakveo (crizanlizumab-tmca), a treatment to reduce the frequency of vaso-occlusive crisis – a common and painful complication of sickle cell disease that occurs when blood circulation is obstructed by sickled red blood cells – for patients age 16 years and older. “Hope has never [...]

2019-11-20T03:30:02+00:00November 20th, 2019|

NIH/Gates Foundation Collaboration to Develop Accessible, Gene-Based Cures for Sickle Cell Disease and HIV

Initial investment aims to advance accessible and scalable candidate interventions into clinical trials within 10 years. The collaboration will align aggressive, high-reward research efforts to accelerate progress on shared gene-based strategies (depicted in green) to cure sickle cell disease and HIV that are available globally including in low-resource settings, while continuing to invest in other [...]

2019-10-24T02:07:34+00:00October 24th, 2019|

ASH Research Collaborative SCD Community Engagement Workshops

If you or a loved one is living with sickle cell disease, we want to hear from you! The ASH Research Collaborative (ASH RC) is a non-profit organization that was established by the American Society of Hematology (ASH) in 2018 to foster collaborative partnerships to accelerate progress in hematology, with the goal of improving the [...]

2019-04-20T22:58:30+00:00March 18th, 2019|

SCD Community Annapolis Day 2019!

ANNAPOLIS DAY IS MARCH 13th!! Come join us for Annapolis Day 2019 when we meet State Legislators to Educate them on the needs of the Sickle Cell Disease Community Would you like to help make a difference in the sickle cell disease community? Please join MSCDA and the sickle cell disease community in supporting Annapolis [...]

2019-03-02T20:50:41+00:00February 16th, 2019|

Senate Bill 161 HAS BEEN PASSED!!!

This is monumental news for the SCD community in the State of Maryland!  Legislation concerning student sickle cell disease management programs in public and nonpublic schools was passed on May 8, 2018.  With the law now in place, The Department and the Maryland Department of Health will develop guidelines for employees to utilize in the [...]

2020-01-20T19:03:12+00:00May 9th, 2018|