On December 31st Maryland and the entire Sickle Cell community lost a warrior and a researcher. Carlton was a friend of MSCDA. Since our earliest days, Carlton volunteered to share his expertise and time in numerous ways. Presenting at forums, sitting on planning committees and many other ways. Carlton was featured in the Baltimore Sun, …
SHARE YOUR STORY WITH YOUR STATE LEGISLATORS! Join us as we advocate for those with sickle cell disease at the State of Maryland General Assembly. This is an opportunity to meet with our legislators and educate them about the needs of the sickle cell disease community. We are planning to meet with Maryland Senators and …
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With COVID-19 at the forefront of nearly everyone’s minds, the Medical and Research Advisory Committee (MARAC) at SCDAA wants to provide information to our sickle cell community. Educating yourself about the coronavirus reduces anxiety and empowers you to protect yourself – and your family – from getting sick. The potential health risk posed by COVID-19 …
COVID-19 Health Alert for Patients and Caregivers Read More »
The United States and countries around the world face a major public health concern with the current outbreak of the novel (new) coronavirus (COVID-19). This webpage is intended to help healthcare providers stay abreast of the best and latest resources for hematologists affected by COVID-19. Read more about ASH’s COVID-19 resources here. ASH President’s Message: …
Sickle cell disease is the most common inherited red blood cell disorder in the United States, and it affects millions of people worldwide. In people living with SCD, the red blood cells, which are normally round, become crescent or sickle-shaped which contributes to the vaso-occlusive crises these patients experience. People with SCD suffer from an …
Shauna Whisenton was once an individual living with sickle cell disease (SCD). Now she’s an advocate for better therapies, a cure, and a better understanding of SCD. Whisenton’s journey was tough. She was hospitalized, received anti-rejection medications, and had to undergo chemotherapy. She persevered with support from family and her medical team. For Whisenton, treatment …
How a Clinical Trial Participant Became an Advocate for the Sickle Cell Community Read More »
Dr. Ahmar Zaidi is a pediatric hematologist who focuses on the care of people with sickle cell disease. He works at the Children’s Hospital of Michigan and is involved in research looking at pain in sickle cell disease patients.
On November 15, 2019, the U.S. Food and Drug Administration approved Adakveo (crizanlizumab-tmca), a treatment to reduce the frequency of vaso-occlusive crisis – a common and painful complication of sickle cell disease that occurs when blood circulation is obstructed by sickled red blood cells – for patients age 16 years and older. “Hope has never …
