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Sickle Cell Disease Educational Briefing- EDUCATING OUR LAWMAKERS ABOUT SICKLE CELL DISEASE

SHARE YOUR STORY WITH YOUR STATE LEGISLATORS! Join us as we advocate for those with sickle cell disease at the State of Maryland General Assembly. This is an opportunity to meet with our legislators and educate them about the needs of the sickle cell disease community. We are planning to meet with Maryland Senators and […]

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Save the Date! – MAY 16, 2020 – A day of SCD education for patients, families and providers!

Mark your calendars for May 16th, 2020, for a day of SCD education for patients, families and providers!  This one day sickle cell disease conference will provide information about current trends in treatment and available resources for patients, family members, caregivers and providers. The event is free for patients and their families.  There is a

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ASH Research Collaborative SCD Community Engagement Workshops

If you or a loved one is living with sickle cell disease, we want to hear from you! The ASH Research Collaborative (ASH RC) is a non-profit organization that was established by the American Society of Hematology (ASH) in 2018 to foster collaborative partnerships to accelerate progress in hematology, with the goal of improving the

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Proposed Legislation Concerning Student Sickle Cell Disease Management Programs in Public and Nonpublic Schools

Exciting News!  Senate Bill 161 was introduced on January 15, 2018.  If passed, the Bill will help build the foundation for new guidelines to be developed regarding the administration of health care services to students with Sickle Cell Disease, attending public and nonpublic schools, in the State of Maryland. Read the entire Bill here  

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Juneteenth

Join the MSCDA at Juneteenth on June 17, 2017. There will be vendors, free food, entertainment, community resources and scholarship recipient recognition! Where: Milford Mill Academy 3800 Washington Ave. Baltimore, MD 21224 When: June 17, 2017 11 a.m. – 3 p.m. Fun for the whole family! Click here to view the event flyer.

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Breaking News

FDA Approves First Gene Therapies to Treat Patients with Sickle Cell Disease

On December 8, 2023, “The U.S. Food and Drug Administration approved two milestone treatments, Casgevy and Lyfgenia, representing the first cell-based gene therapies for the treatment of sickle cell disease (SCD) in patients 12 years and older. Additionally, one of these therapies, Casgevy, is the first FDA-approved treatment to utilize a type of novel genome editing technology, signaling an innovative advancement in the field of gene therapy."