About marylan1

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So far marylan1 has created 17 blog entries.

Facing the Future Together

Mark your calendars for May 5th, 2018, for a day of SCD education for patients, families and providers!  This one day sickle cell disease conference will provide information about current trends in treatment and available resources for patients, family members, caregivers and providers. The morning session is targeted to healthcare providers and offers 3 CME [...]

2018-04-05T17:10:42+00:00April 5th, 2018|

Proposed Legislation Concerning Student Sickle Cell Disease Management Programs in Public and Nonpublic Schools

Exciting News!  Senate Bill 161 was introduced on January 15, 2018.  If passed, the Bill will help build the foundation for new guidelines to be developed regarding the administration of health care services to students with Sickle Cell Disease, attending public and nonpublic schools, in the State of Maryland. Read the entire Bill here  

2018-02-16T11:56:52+00:00February 16th, 2018|

A Survey For Adults Living with Sickle Cell Disease

UMBC is conducting a study to better understand the association between social relationships and quality of life among adults living with sickle cell disease. The goal of the questionnaire is to find out more about quality of life in sickle cell by asking you - the people who know best. You must be 21 years [...]

2018-01-05T19:40:20+00:00December 21st, 2017|

COMMUNIFEST – November 2017

Come on out to COMMUNIFEST, Friday November 17th from 10 AM to 1 PM, for a Community Holiday Celebration,  sponsored by the Baltimore City Community Action Partnership. Workshop Topics Include: Eating Healthy, Budgeting, Saving Money, Managing a Debit/Credit Card and Conserving Energy. Where: Southern CAP Center 606 Cherry Hill Road, 21225 Click here to view [...]

2018-01-05T20:01:06+00:00November 7th, 2017|

The ESCAPED Project

The Emergency Department has been the standard location where patients with Sickle Cell Disease (SCD) go to seek care for the treatment of acute painful events. Vaso- Occlusive Crisis (VOC) is the most common complication of SCD, The purpose of this study is to compare patient centered outcomes for patients being treated for an uncomplicated [...]

2017-07-10T19:57:06+00:00July 10th, 2017|

FDA Approves New Treatment for Sickle Cell Disease

GROUND BREAKING NEWS!!! The FDA has approved a second drug for patients living with sickle cell disease.  With the recent approval of Endari, patients now have an additional option to help reduce the complications associated with the disease.  Read more here    

2017-07-10T16:05:57+00:00July 10th, 2017|