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So far marylan1 has created 16 blog entries.

Care Today, Cure Tomorrow Conference Presentations

"Care Today, Cure Tomorrow,” joined patients, families, and providers to discuss and share information that addressed the critical issues framing the future of Sickle Cell Disease treatment and management. Below you'll find links to conference presentations. The Cure Sickle Cell Initiative (CureSCi) - Dr. Traci Heath Mondoro Gene Therapy Technologies for SCD: from no treatment [...]

2019-05-27T23:48:45+00:00May 27th, 2019|

Care Today, Cure Tomorrow

We would like to thank the SCD community for joining MSCDA in Baltimore as we shared information on the latest medical developments and provided useful educational materials in an effort to spread awareness and improve the lives of those living with sickle cell disease. "Care Today, Cure Tomorrow,” joined patients, families, and providers to discuss [...]

2019-05-27T23:45:24+00:00April 12th, 2019|

ASH Research Collaborative SCD Community Engagement Workshops

If you or a loved one is living with sickle cell disease, we want to hear from you! The ASH Research Collaborative (ASH RC) is a non-profit organization that was established by the American Society of Hematology (ASH) in 2018 to foster collaborative partnerships to accelerate progress in hematology, with the goal of improving the [...]

2019-04-20T22:58:30+00:00March 18th, 2019|

SCD Community Annapolis Day 2019!

ANNAPOLIS DAY IS MARCH 13th!! Come join us for Annapolis Day 2019 when we meet State Legislators to Educate them on the needs of the Sickle Cell Disease Community Would you like to help make a difference in the sickle cell disease community? Please join MSCDA and the sickle cell disease community in supporting Annapolis [...]

2019-03-02T20:50:41+00:00February 16th, 2019|

Shoot Out Sickle Cell 2018

In celebration of World Sickle Cell Awareness Day, Maryland Sickle Cell Disease Association presents our inaugural Shoot Out Sickle Cell 2018 event. Bring your family out to see some of Maryland's best basketball talent ...Old School and New School. Think you've got skills? Come take your best shot in out Half Time Shoot Out contest. [...]

2018-06-15T21:20:23+00:00June 15th, 2018|

Senate Bill 161 HAS BEEN PASSED!!!

This is monumental news for the SCD community in the State of Maryland!  Legislation concerning student sickle cell disease management programs in public and nonpublic schools was passed on May 8, 2018.  With the law now in place, The Department and the Maryland Department of Health will develop guidelines for employees to utilize in the [...]

2018-05-09T20:20:13+00:00May 9th, 2018|

Facing the Future Together

Mark your calendars for May 5th, 2018, for a day of SCD education for patients, families and providers!  This one day sickle cell disease conference will provide information about current trends in treatment and available resources for patients, family members, caregivers and providers. The morning session is targeted to healthcare providers and offers 3 CME [...]

2018-04-05T17:10:42+00:00April 5th, 2018|