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Sickle Cell Disease Educational Briefing- EDUCATING OUR LAWMAKERS ABOUT SICKLE CELL DISEASE

SHARE YOUR STORY WITH YOUR STATE LEGISLATORS! Join us as we advocate for those with sickle cell disease at the State of Maryland General Assembly. This is an opportunity to meet with our legislators and educate them about the needs of the sickle cell disease community. We are planning to meet with Maryland Senators and

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Save the Date! – MAY 16, 2020 – A day of SCD education for patients, families and providers!

Mark your calendars for May 16th, 2020, for a day of SCD education for patients, families and providers!  This one day sickle cell disease conference will provide information about current trends in treatment and available resources for patients, family members, caregivers and providers. The event is free for patients and their families.  There is a

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Care Today, Cure Tomorrow Conference Presentations

“Care Today, Cure Tomorrow,” joined patients, families, and providers to discuss and share information that addressed the critical issues framing the future of Sickle Cell Disease treatment and management. Below you’ll find links to conference presentations. The Cure Sickle Cell Initiative (CureSCi) – Dr. Traci Heath Mondoro Gene Therapy Technologies for SCD: from no treatment

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ASH Research Collaborative SCD Community Engagement Workshops

If you or a loved one is living with sickle cell disease, we want to hear from you! The ASH Research Collaborative (ASH RC) is a non-profit organization that was established by the American Society of Hematology (ASH) in 2018 to foster collaborative partnerships to accelerate progress in hematology, with the goal of improving the

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