SCD Community Annapolis Day 2019!

ANNAPOLIS DAY IS MARCH 13th!!

Come join us for Annapolis Day 2019 when we meet State Legislators to Educate them on the needs of the Sickle Cell Disease Community

Would you like to help make a difference in the sickle cell disease community? Please join MSCDA and the sickle cell disease community in supporting Annapolis Day 2019! It is important that lawmakers hear the voices see the faces of those living with sickle cell disease. Supporting local and national events such as Annapolis Day assists in the passing of vital legislature needed to improve the lives of those living with sickle cell disease.

FREE TRANSPORTATION for persons with Sickle Cell Disease from Baltimore (Johns Hopkins Hospital) and Prince George’s County (New Carrollton Metro Station)

REGISTER HERE

EVENT AGENDA

Sponsored by:

Faces of Our Children, Inc.

Maryland Sickle Cell Disease Association (MSCDA) Sickle Cell Anemia Association of Harford/Cecil Counties

William E Proudford Sickle Cell Fund, Inc.

Please contact us if you have any questions or need additional information.

We hope to see you on March 13!

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Breaking News

FDA Approves First Gene Therapies to Treat Patients with Sickle Cell Disease

On December 8, 2023, “The U.S. Food and Drug Administration approved two milestone treatments, Casgevy and Lyfgenia, representing the first cell-based gene therapies for the treatment of sickle cell disease (SCD) in patients 12 years and older. Additionally, one of these therapies, Casgevy, is the first FDA-approved treatment to utilize a type of novel genome editing technology, signaling an innovative advancement in the field of gene therapy."